I will be your voice!

To the world, you are just one, but to me you are the world.

Thursday, December 6, 2012

Kaylynne Matten: Cause of Death “Undetermined.” Parents Believe Flu Vaccine Killed Their 7 Year-Old Daughter. | VaxTruth.org


“She was always 100 percent healthy,” dad Justin said.
Kaylynne’s death came just four days after a doctor’s visit where she got her annual flu shot during a routine checkup. That was on Friday. On Saturday, Kaylynne developed a headache and fever. By Sunday it spiked to 102.3 and the little girl started vomiting and became disoriented.
“She said ‘mommy, I don’t know where I am.’ It broke my heart,” Nicole Matten said.
That’s when Nicole called the pediatrician. She says the doctor wasn’t overly concerned and told her to use Tylenol and Motrin.
“Tuesday morning she got up and her hands and legs were purple, so we called the doctor’s office and they said bring her right up. So we did,” Nicole said.
But on the 15-minute ride to the doctor’s the unexpected happened. Kaylynne stopped breathing in her mother’s arms.

Kaylynne Matten: Cause of Death “Undetermined.” Parents Believe Flu Vaccine Killed Their 7 Year-Old Daughter. | VaxTruth.org:

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Friday, November 30, 2012

Vaccines And Autism: The Secret That You Are Not Supposed To Know

Vaccines And Autism: The Secret That You Are Not Supposed To Know: "According to the Centers for Disease Control and Prevention, the number of children in the United States with autism has risen by 78 percent over the past decade.  It is now estimated that 1 out of every 88 children in the United States has some form of autism disorder.  Our schools are absolutely packed with “special needs” children and millions of parents are desperately trying to figure out why so many kids are having such severe developmental problems."

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Autism advocates, NIH, CDC testify to Congress about research, autism increase - National DC | Examiner.com

Autism advocates, NIH, CDC testify to Congress about research, autism increase - National DC | Examiner.com:
Autism advocates and government officials testified in front of a congressional committee Thursday about the federal response to the dramatic increase in autism diagnoses in recent years.

One in every 88 babies born in the U.S. will develop autism, according to the Centers for Disease Control, a 23 percent increase since 2009 and a 78 percent increase since 2007. In the 1960s, autism was believed to affect one in 10,000 children in the U.S.
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Landmark Autism Hearing: "The Troops Have Landed on Normandy Beach" - AGE OF AUTISM

Landmark Autism Hearing: "The Troops Have Landed on Normandy Beach" - AGE OF AUTISM:


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Saturday, September 1, 2012

What is it like for a Parent of a Child with Severe Autism?

I had always assumed that other people understood what I go through everyday and that just knowing my son's diagnosis was enough for them, the one's with normal lives to understand, but I couldn't have been more wrong.

Yes....they know I have a son with autism, but then later I come to find out, they thought they knew enough to judge me.

I've often thought about how to explain to a parent of neotypical (normal) children, what is like to raise a child with Severe Autism.

Did I mention?

  • He can't talk?
  • That the Obsessive Compulsive routines and behaviors are a constant battle? 
  • He needs the exact routine, everyday, every minute of the day?
  • The digestive distress, the undigested food, the constipation, the diarrhea?
  • Self injurious behaviors-head banging, hair pulling, self punching?
  • The proneness to wonder away from home?
  • The special diets?
  • The vitamins and mineral supplements?
  • The doctors who refuse to treat him like a person?
  • The sleepless nights, when he goes from crying, to giggling, then to jumping on the bed, or the nights when at 5 o'clock in the morning after being up since 1:30 am, I just watch him stare at the television set, wondering how will I be able to get up in two hours?
  • The socially unacceptable behaviors of stripping naked and the smearing of feces all over walls and on himself?
  • The self imposed isolation, which might seem extreme to some, but it's the only way I can make sense of my life-not to mention how devastating it is to see other families apparent normalcy and know that, that life is not even a remote possibility ever again?
The sum of all the above is an exhausted woman with little patience for such an intolerant world. All of those struggles and hard work seem small compared to the torture of the memory of my youngest son who was whole, healthy and happy once and almost overnight regressed into what I came to know as Regressive Autism-the two most hated and devastating words in my vocabulary.

So I say to you who dare to think you know what my life is like, that unless you have a fifteen year old in diapers, you can't even begin to understand, and much less judge me!

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