I will be your voice!

To the world, you are just one, but to me you are the world.

Monday, September 29, 2008

All I Wanted Was a Tomato!


One day last week, I was making some sandwiches, for my girls and me, when I realized, there were no tomatoes left in the refrigerator. I looked out my kitchen window and noticed there was one ripen tomato left on the plant outside. I almost walked out the door, when I remembered, that every time I walk out the sliding door, Mickie locks me out. I turned around and put the sandwiches away, so Mickie won't eat them, because he is GFCF, I then locked the refrigerator, the cabinet under the sink, the spice pantry, the food pantry, the hallway gates and my bedroom, so he won't eat my hand lotions and spill my hair products.

I grabbed my set of keys and as I walked out the door, I could see Mickie starting to move towards me. Sure enough, by the time I reached the tomato plant I was locked out of the house. I picked my tomato and walked back to the sliding door and proceeded to knock on the door. Mickie just looked up at me from his chair and stimmed. I made the sign for eat, to see if that would work, but it didn't; after all, he had just eaten, he didn't need me anymore.

I then walked around the left side of the house and unlocked the gate, then got back into the house. A few minutes later as I sat there finally enjoying my sandwich, I thought to myself-good greaf, all I wanted a tomato!

Saturday, September 27, 2008

Chelation is on Hold


Well, once again, I have to stop "Chelation Therapy" for Mickie. I don't know if I will try again, anytime soon. He seems to become almost psychotic and terribly obsesive during those three days on, but now he doesn't do well during the 11 days off either.


I recall that during the summer I stopped all his supplements and meds for two weeks and he seemed to improve so much and finally gain some weight. I think he needs a long breack. His DAN is not going to agree, but in the end; I know him better then anyone else, and he needs a long break.

Friday, September 26, 2008

Tonight I had the opportunity to get away. I went to an art show opening, while my mom watched Mickie. For two hours I was just me and not the mercury mom or Mickie's mom, instead I was as any other person there, lost in a sea of artists.

I guess artists are the only people besides the autism moms, that I can related too now days.

When I got home I got a dose of reality. My mom said that Mickie practically kicked his respite worker out of the house, then when it was time for his dinner, he wouldn't let my mom turn on any lights in the kitchen, so she had to pretend, to look for something in the refrigerator, so she could see the supplements and medicines, he was supposed to take with his dinner. He then refuse to let her dress him and then took her by the hand and walked her to my little art studio and she had to sit on the couch for an hour until I got home.

Oh well, back to reality.

Thursday, September 25, 2008

Jenny MacCarthy on Oprah

Jenny MacCarthy was on Oprah yesterday!! One more successful interview and one more chance for our voices to be heard. I was so happy to see her out there again.

I had to pre-record the show of course; otherwise, I would have missed it. Mickie is home at 3:00 in the afternoon and I stay busy with him until he goes to bed.

I just love her passion and determination for the Autism Cause. I don't think anyone else, could have done a better job, then she has. Jim Carrey was amazing too. Hooray for our Jenny!!!

I just finished reading her book "Louder Then Words". I cried through the whole thing and I can't wait to buy her next book, "Mother Warriors".

I wonder what she plans on doing next. I can't wait to find out.

Tuesday, September 23, 2008

Need More Coffee!!

Its eight in the morning and Mickie just left on the bus. I need more coffee!!

I have been up since four o'clock in the morning. Mickie has been waking up earlier in the past few weeks. Sometimes he just stims with his voice, and that's okay, as long as I know he is happy, but for the most part, when he wakes up this early, he does it, because of digestive distress, and he cries and runs endlessly.

Some times I wake up to the sounds of his head on the floor. That's when everyone in the house gets up to try to stop him.

In the past month, he has had a few food infraction. He is on gfcf and SCD diet, but last week he ate a whole bagel, when he got into his oldest sister's room at five o'clock in the morning. I woke up to the sounds of him making regurgitation noises, which is what he does every time he eats. All the cabinets, pantry and refrigerator are kept locked, but I just knew he was eating something.

Two days ago, he sneaked a few bites of Mac & cheese out of his brothers plate. I wish, I had eyes on the back of my head, to watch his every move, but I don't, so I have to watch him suffer afterwards, when he is trying to digest all this junk, that his digestive system can't handle yet.

Monday, September 22, 2008

Mickie's Birthday


Last September 10th, Mickie had his 11 birthday. This year, I did better then last year. I was at least able to get through this day without crying. The day before, I went to the Farmer's market and bought the ingredients to make him a GFCF and SCD legal cake. Let me tell you, that it wasn't easy, but I pulled it off.

Mickie's siblings and his grandparents and I enjoyed his birthday cake, along with him. He wouldn't blow out the candles, even thought he can blow into a flute. He doesn't understand the concept of making a wish and blowing a candle, so it will come true. I did it for him and I made the wish for him too. I wished he would get better soon.
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