I will be your voice!

To the world, you are just one, but to me you are the world.
Showing posts with label recovery. Show all posts
Showing posts with label recovery. Show all posts

Thursday, July 15, 2010

Stop Calling it Autism!


Stop Calling It Autism! was founded with the purpose of helping defeat Autism once and for all. As crazy as it might sound at this point, defeating Autism is totally possible, science currently exists that explains EVERYTHING medically and is as concrete and clear as you can ever imagine, no puzzles or mysteries.

Instead of hearing one success story here or there, we have to work together and prove that Autism is a set of symptoms caused by a medical disease so we can get the most needed medical help for ALL the children suffering from Autism.
We are starting a fight for your children and for all the children suffering from Autism out there. We promise you that we will do our best. Now... We will only be successful if every single family with children suffering from "Autism" gets involved to make the SCIA goals listed below a reality. We need you!
Below are the links for the Stop Calling It Autism! (SCIA) brochure that we are putting together. This brochure has been a great exercise to define who SCIA is and what the mission, believes and goals are. The brochure explains what SCIA is all about. If there is something you don't understand let us know. The brochure has to be easy to understand and "as clear as water".

Please review the brochure and let us know what you think. We are just about to be ready to send the brochure for print and we need your invaluable opinion.

SCIA Brochure Front

http://www.stopcall ingitautism. org/content/ sciabrochurefron t.jpg

SCIA Brochure Inside

http://www.stopcall ingitautism. org/content/ sciabrochureinsi de.jpg

"Together we will give children with "Autism" an undeniable voice that will finally put and end to this medical epidemic."



Thanks,
The Stop Calling It Autism! Team
http://www.stopcall ingitautism. org



SCIA Goals
· Create a world that redefines Autism
· Create a world where doctors no longer think that Autism is a developmental or psychiatric disorder but a medical problem that can be treated medically.
· Create a world where parents can take their children to any doctor, in any city, in any country where the doctor says I know what this is; recognize that it is an immune mediated medical condition, and knows what to do about it.
· Create a world where researchers and governments recognize the enormity of the Autism epidemic and have no choice but to put all available resources into solving it
· Create a world where the pharmaceutical companies are competing to be the first to develop the medicines to treat and put an end to Autism
· Create a world where researchers, educators, behaviorists and doctors realize they all have a piece of the Autism puzzle and they need to work together to solve it.
· Create a world where when a child turns 18, the only group home he is going into is a college dorm
· Create a world that has a single focus and recognizes that Autism is a set of symptoms caused by a medical disease.
· Create a world where individuals with Autism recover and have the potential for full productive lives.

Source:
gabrieladevelbiss@yahoo.com (Gabriela DeVelbiss)



Friday, November 28, 2008

Autism Treatments Come With a Hefty Price


Well it has now been eight years since I started on the road to recover Mickie. I have tried most of the treatments and diets recommended and Mickie is not even close to recovery, but wait-I'm not implying that all these alternative therapies don't work. They just don't work for everyone and maybe, just maybe, Mickie is one of those cases.

I have tried a few of the diets-Gluten and Casein free for the past 7 years and "The Specific Carbohydrate Diet" for the past year. He doesn't seem to be in so much pain anymore, but he is still very much lost in his own world. I tried the Dan protocol too and it's very expensive.

I've heard about Stem Cell, but I'm skeptical. HBOT which I hope to try soon. He had one session a year and a half ago and on the trip home, it was the calmest I have ever seen Mickie all his life, but It's expensive and they push for forty treatments in a row, for 40 days, which amounts over 4,000 dollars and I just don't have it. The Autism Research Institute report that about 16% of cases, it causes get worse. I don't think my heart could survive Mickie getting worse then he is. Until I find a Doctor that will allow me to choose giving him a treatment once in a while-I wait.

It's not easy for me to say this, because recovering Mickie has been the driving force behind my determination and the source of my strength. Without the hope, I don't think I would have been able to get out of bed every morning and follow the same routine day in and day out, and almost becoming autistic myself, in other to keep Mickie's world predictable and diminishing the amount of stress he experiences, with not much success, because he lives in a constant state of stress in spite of my efforts.

Recovery comes with a hefty price, so with lots of money it's a real possibility, but without it, it's just a dream.

Friday, April 11, 2008

~Being Proactive~


I was very depressed back in September when Mickie turned 10, because of the lack of progress I had seen and on top of that he was becoming anorexic, loosing his hair and was becoming very violent towards himself and others. He had not slept through the night in over nine years.

Turned out that he just needed better nutrition and his hair has grown back with a vengeance and even his sister is jealous of his hair now. His aggressiveness was nothing more than his way to cope with pain in his digestive system.

I took that sadness and I turned it around. I started being more proactive. I went to this website: http://www.generationrescue.org and there I found stories of hope and recovery. They also had a list of rescue angels, which are parents just like us who are recovering their children. They will walk you through it.

I know that you must think it's too late, because your son is not little anymore or maybe you think that the window of opportunity has closed, but I am here to tell you it's not to late!

Mickie said Mama yesterday for the first time in nine years. It can happen to your son or daughter too. With digestive enzymes, Probiotics, multivitamins, multi-minerals and diet modifications most Autistic kids and even older ones can have a better quality of life.

You can reverse many of the worse symptoms. So they are still autistic, but at least they can continue to be who they are, without pain and frustration.
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